Genetic Research in the Cross‑Cultural Context. The Case of the Havasupai

Abstract

Genetics and medicine in bioethical debates are usually presented as global phenomena, which are (or ought to be) based on a universal system of values (principalism). However, the issue of genetic research can also be seen in the intercultural relationships context. In this understanding, genetic testing is a product of the dominant culture which uses the local, tribal cultures. There are charges of “biocolonialism”, “biopiratism”, the return of racism, or the new eugenics. They are particularly vivid in regard to small ethnic groups which have a frequent occurrence of certain health conditions. An example is a Native American tribe, the Havasupai people, who suffer from especially frequently occuring diabetes type 2. The text is concerned with the genetic research among the Havasupai people, and the socio-cultural consequences of the research.